**Author details**

Adrian Thorogood Centre of Genomics and Policy, McGill University, Canada

\*Address all correspondence to: Adrian.thorogood@mcgill.ca

© 2020 The Author(s). Licensee IntechOpen. This chapter is distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/ by/3.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

*International Data Sharing and Rare Disease: The Importance of Ethics and Patient Involvement DOI: http://dx.doi.org/10.5772/intechopen.91237*
