**7. Conclusions**

We can conclude that our participants showed will to express their attitudes regarding this important medical, societal, and bioethical concern in our community. Patients, as well as medical doctors and pharmacists, are aware of the most significant challenges concerning this topic in Serbia.

However, we need to improve both knowledge and attitudes of all participants in the health care system. Patients should be encouraged to more actively advocate for their rights through the formation of associations, and medical professionals to make greater efforts in the field of education on this subject.

Additionally, we believe that education is very important among medical students as future physicians, as our previous research has proven.

Finally, we would like to point out that at this moment our country has already conducted different kind of activities in order to create national strategy and registries of RDs, to form centers of expertise, to improve accessibility of orphan drugs, etc. Concerning this, we consider this is the critical point for conducting public discussion regarding this issue. An initiative like this should involve not just medical professionals and regulatory bodies, but the RDs patients and the general public as well. We strongly believe this is the unique way to significantly improve the position of these patients in our community in future.
