**Acknowledgements**

would use the app. At face value, not regularly could be perceived as concerning; however, CF patients attend CF clinic appointments quarterly, and entering data is at the patient's discretion. In addition to this, minor issues in device functionality were reported by this cohort, which have since been addressed and resolved. Interestingly, unlike the findings of the paper-based patient passport, participants of this study identified themselves as the sole or major inputter of data. This is perhaps a clear advantage to paper-based passports, which reported uncertainties in this responsibility, as discussed previously. This may be attributed to the passport being based on a patient's personal device, as opposed being provided to them in a

Moreover, the app in its current form was received positively by the participants

of this study. All participants agreed that having access to their basic medical information is of benefit to them. Furthermore, these patients envision practical

The app is currently available for free on the Google Play Irish store. Future works would include deploying the app to iOS app store and being linked to the Cork CF Centre website. Information pertaining to data usage intentions and storage will is made available on the app store description page. The results of the patient survey conducted found that this cohort showed interest in the recording and viewing of their medical data in a convenient and manageable way. To this end, it was found that the concept of a patient passport could prove to be a suitable solution. Patient passports have been proven to help patients with self-management as it facilitates the ability to closely monitor their own condition. Hence a passport application was developed so that CF adults could record their medications and basic CF information. It is also anticipated that this will allow these patients to receive care when travelling between centers and abroad. A pilot study with four participants demonstrates that CF adults perceive this passport app to be beneficial as it allows them access to their basic medical information. It was also found through the pilot study that participants would not use this mHealth app frequently. This is a similar finding to paper-based passports, as patients only enter the data into the app during clinical appointments (quarterly) and share data in specific scenarios such as with a GP, or when travelling abroad. As the app is password protected, the user must be able to enter in their correct credentials and navigate through the app to share data. However, in situations such as needing to attend the accident and emergency room, this may cause further frustration to the patient, whereas a paper-based passport can be handed to medical professional who can locate all data needed in order to provide care. This is perhaps one advantage of the paper-based system over the digital mHealth app. To contend with this, future iterations of the app may include a Generate PDF button on the main menu which will compile all the most pertinent medical data into an A4 PDF which can be shown to medical professionals via the device or emailed to them directly. This suggestion can also be applied to mHealth patient passports for other conditions. It is also noted that the data from the app is stored locally only. For this reason if the phone became lost or stolen, it would not be possible to restore a profile onto a new phone, in this case the user would have to re-input all their data. This design choice was made based on the feedback from the mHealth survey regarding security and the app connecting to other online sources. However, future iterations of this app will implement the ability to migrate data from one smartphone to another in the event the user purchases a new phone. Once the data has been migrated, data stored

scenarios in which this app may be of benefit to them in the future.

hospital branded booklet.

**120**

**6. Conclusion and future works**

*Cystic Fibrosis - Heterogeneity and Personalized Treatment*

We would like to acknowledge funding from CFMATTERS which is funded under the European Union's Seventh Framework Programme (FP7/2007–2013) under grant agreement no 603038.
