**9. Study limitations**

The authors recognize the limitations of purposive sampling and interviews as they are susceptible to interviewer judgment errors, low levels of reliability and limited generalizability of findings. The interviews are subject to bias as they are subjective in nature and do not provide an exhaustive view of the families' experiences. Another limit of using semi-structured interviews, is they are time consuming and thus the sample size is smaller but do allow for more in-depth sharing/understanding of lived experiences which can provide a strong baseline for further study.
